Wednesday, July 14, 2010

hi

   If you've read our story you already know I have MS.  While that is major, there is so much more to who I am.  There is no denying that the MS is integral but it doesn't define me.  I am a wife, a mother, a gramma;
a writer, an artist, a former teacher.  I am a baker, a gardener, a reader, a dreamer, a friend.  And I am a woman who has a disability.  I have MS.
   To be honest, there are days when I feel like all I am is a woman with MS.  It grabs me from the inside and holds on so tight that it overwhelms me.  I feel tired and I don't want to face the day.  My positive identities disappear.  It's a complex relationship.
   When David began researching the website, I knew that I wanted to make a contribution.  As Disabled Discounts comes together, state by state, I'd like to create a space where disabled people and their caregivers share their thoughts and feelings, a place to talk about our concerns and feel supported by the strength of a community who understands us as individuals.

1 comment:

  1. I know exactly what you mean. Having a disability is hard work. Some days all you get done is getting through the day. But points for that.

    As Whoopi Goldberg said in The Color Purple, "I'm here," and so are we. Occasionally, that has to be enough.

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