Sunday, August 1, 2010

Ethan and me

I know that all grandparents think that their grandchildren are unique and special.  They should...
Ethan is even more than that to me...he is the magic in my life...he is my heart...

When he makes his star light, star bright wish the nights that we spend together
 and urges me to make one of my own
 I say, "only a small one, Pumpkin Boy..."
Of course, after all our years of wishing together
 he knows precisely why I only allow myself these tiny wishes...
but children love to hear the same stories over and over again
especially when the story is about them! 

And so I tell him my tale that before he was born I would say,
star light
star bright
first star I see tonight
I wish I may
I wish I might
have the wish
I wish tonight
And then he always says, "what did you wish for Gramma?"
And I say, "I wished for You, Pumpkin Boy!
 So now I don't want to be greedy..."

Ethan has known about my MS since he was 2...
at first he understood that Gramma got very tired
 but so did he and we both took a nap.
 He saw me swallowing pills
and though I was very very careful he knew to never ever touch pills.
 Once he said he might like to take pills when he got big...I almost cried...
Instead I told him that I hoped he wouldn't need to take pills but sometimes it's necessary...
I only take the pills that my doctor says are really important for people with MS...
especially Grammas...
"We both need to be strong and healthy so we can always have lots of fun together," I told him...

He told me not to worry because he could give me extra kisses for energy...

I would love to tell you more stories about Ethan but only one more thing tonight...
Now that he is older, Ethan likes to tell people that his Gramma has Ms...

And then he announces rather seriously, "that it can never ever go away."
I've thought about this carefully, and it's almost as if he has given me this odd super power
or a badge of honour...
-mara

1 comment:

  1. Isn't it funny how kids often say exactly the right thing? I love the thought of extra kisses for energy.

    What a beautiful post, Mara.

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